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Ikeuchi family,with Asou Haruto Aya Kitō (19 July 1962 - 23 May 1988), a Japanese girl who wrote a diary about her experience with the disease. Her diary, titled '1 Litre of Tears' was published after her death and adopted into a television drama of the 1 Litre no Namida and the film A Litre of Tears.
recently, i've watched this drama series named "1 Litre of Tears"
it is a touching story based on the life of a girl named Kitou Aya,who had acquired Spinocerebellar Ataxia, which, for unknown reasons, the spinal cord and the cerebellum degenerates. the are many forms of Spinocerebellar Ataxia,but the general signs are that the patient retains his/her full mental capacity, but loses physical control.
Aya started with imbalance problems,then progressively,she slowly lost the ability to control her legs and became bed-ridden. she could write,but slowly she could not do so, and she chokes easily. the disease remains uncurable even now.
it actually hurts to see her try so hard (in the drama).
she's so positive, overlooking the glances tossed in her direction due to her disease, and the many horrible remarks.
she had written in her diary:
"it was great to look at them work to fold 1000 paper cranes, but i'd rather they said 'dont go,Aya.' " a few days before she was due to transfer to disability school.
Aya had also written:
"when i place my hands on my chest, 'doki doki, doki doki', it feels great to be alive!"
*doki is the sound of heartbeat,the way japanese put it.
all in all, a definate must-watch!
i think i must have cried 1 litre of tears watching the drama.. ha ha.
i even finished the series within the week! (yes,i know. i'm shocked,too.)
and now,i think that maybe i have to put more into my life than it is now.
i had wanted to help poeple,but after i watched the drama,i am more convinced about my future career path, and that i have to do things as though they are the last time i am doing them. as the saying goes, "Live like you would die tomorrow, Dream like you would live forever."
i believe Aya had held true to her course of helping others.
i will, as well, work toward my own goals.
and i will do my best!
